We had such a great response for the fun run in November, that we're running a fundraiser to coincide with Jovie's 4th birthday in May 2013! We hope that we spread more awareness about Rett Syndrome this year, aswell as raise some funds for the awesome people at Rett Syndrome Research Australia.

Rett Syndrome Research for Telethon Institute for Child Health Research

The Telethon Institute for Child Health Research is one of the largest, and most successful medical research institutes in Australia.

The Institute was among the first to adopt a multidisciplinary approach to major health issues: clinical research, laboratory sciences and epidemiologists all under the one roof, to tackle complex diseases impacting children and families.

With the help of the generous community, we continue to strive for answers to the big questions in childhood disease and disability and to deliver hope through life-changing research.